On the Radio
Friedreich’s ataxia is a rare, debilitating neuro-muscular disease that slowly robs a person of their strength and ability to walk - and at this time, there’s no approved treatment for the disease.
USF is the lead site on a national clinical trial of a drug that will hopefully help control symptoms of F-A. On this week’s University Beat on WUSF 89.7, we’ll tell you more about the trial and some upcoming Friedreich-related’s events in Tampa. You’ll also meet a young woman participating in the trial who refuses to let the disease take control of her life.
Radio - During "Morning Edition" on WUSF 89.7 Tuesday after the 6:45 AM and 8:45 AM newscasts | During "All Things Considered" on WUSF 89.7 Tuesday at 5:44 PM | After "Florida Matters" on WSMR 89.1 Monday just before 10:30 PM
Television - Tuesdays at 11:55 AM and 8:55 PM, and various times throughout the rest of the week
24-year-old Natchez Hanson describes what it's like living with Friedreich's ataxia and talks about how her students at Fort Meade Middle-Senior School in Polk County treat her.
For more information
USF Ataxia Research Center
Clinic Appointments: 813-396-9478
Friedreich's Ataxia Research Alliance (FARA)
Edison Pharmaceuticals Inc.
Clinical trial of EPI-743 is already full & underway
Thursday, September 5th
Understanding A Cure Friedreich's Ataxia Scientific Symposium
USF Health’s Center for Advanced Medical Learning and Simulation (CAMLS)
Click here to RSVP, free to the public, will also be live-streamed
Saturday, September 7th
2013 FARA Energy Ball
A La Carte Event Pavilion Tampa
Click here for ticket info