On Television

Natchez Hanson & USF Ataxia Research Center Dir., Dr. Theresa Zesiewicz
Ataxia Research
We're taking a look at some of the work being done at the USF Ataxia Research Center, particularly in a clinical trial of a drug that might become the first approved treatment for Freidreich's ataxia. University Beat on WUSF TV also introduces you to an FA patient and tells you about a pair of very important upcoming events for the Center.

On the Radio

"Patient panel" at last year's USF ARC-FARA Friedreich's ataxia symposium. Natchez Hanson is second from left. (courtesy USF Health)
Ataxia Research

Friedreich’s ataxia is a rare, debilitating neuro-muscular disease that slowly robs a person of their strength and ability to walk - and at this time, there’s no approved treatment for the disease.
USF is the lead site on a national clinical trial of a drug that will hopefully help control symptoms of F-A. On this week’s University Beat on WUSF 89.7, we’ll tell you more about the trial and some upcoming Friedreich-related’s events in Tampa. You’ll also meet a young woman participating in the trial who refuses to let the disease take control of her life.

Program Schedule

Radio - During "Morning Edition" on WUSF 89.7 Tuesday after the 6:30 AM and 8:30 AM newscasts | During "All Things Considered" on WUSF 89.7 Tuesday at 5:44 PM | After "Florida Matters" on WSMR 89.1 Friday at 7:30 PM
Television
- Tuesdays at 11:55 AM and 8:55 PM, and various times throughout the rest of the week

Related Stories

Video extras

See video

24-year-old Natchez Hanson describes what it's like living with Friedreich's ataxia and talks about how her students at Fort Meade Middle-Senior School in Polk County treat her.

For more information

USF Ataxia Research Center
Clinic Appointments: 813-396-9478
website

Friedreich's Ataxia Research Alliance (FARA)
484-879-6160 website

Edison Pharmaceuticals Inc.
website
Clinical trial of EPI-743 is already full & underway

USF-FARA EVENTS
Thursday, September 5th
Understanding A Cure Friedreich's Ataxia Scientific Symposium
USF Health’s Center for Advanced Medical Learning and Simulation (CAMLS)
Click here to RSVP, free to the public, will also be live-streamed

Saturday, September 7th
2013 FARA Energy Ball
A La Carte Event Pavilion Tampa
Click here for ticket info

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